I Do Not Know

Time is the utmost importance to my husband, a routine for everything in his daily life. Through the years, I could tell you what time it was without looking at a clock, and still.

1273D36A-7EBA-4A65-86F1-18124B059B36As I think back to our first apartment together as husband and wife, his closet of suits, shirts and ties were organized in a way that made me squinch my eyes, thinking what is up with that, especially for a man. It was interesting but it worked for him and I did not touch his system.

Sometimes, I have heard laughter about socks, pairs of socks that were separated in two drawers, the right drawer and left drawer, for socks of the left and right foot. If we had the room, I would expect just that.

A little quirky but aren’t we all? I would leave it at that but still sometimes shaking my head of, whatever.

Bedtime was and still is a major time issue, even after thirty years. No matter what is happening or who in the house, it is his bedtime at 10 pm, leaving me, boys, 15833DC3-EE4F-49DC-BB01-957B5AA88CDCcompany, etc. If we’d be out later than usual, he would shut down at 10 pm. Since we had children, especially our first, after 10 pm, I am on my own with this child and basically needed to keep the baby quiet or could receive a look. A baby will cry, we all know that. When there was no consoling this bundle of sweetness, this child would become velcroed to my breast for nursing. I was exhausted while he had his precious sleep. After awhile, anger starts to build within due to lack of sleep and my F493BF8A-EDE7-4AE4-8C3A-19EF65D030A9own self-care. This continued with the second child, two years later also. Thankfully, I was a stay-at-home mom, feeling like it was my duty, but I also enjoyed my role as a mother. He is the one working and bringing the money home so I just have to deal with it and know my place.

As the boys got older, they would all go out to play, leaving me at home, most times. That was my time. Sounds great. My time consisted of cleaning, catching up on laundry, etc. Still, to this day, the mailbox is all mine, as I am to get the mail, because back then, that was my only outside life, it felt like.62A2C657-7F89-4F6C-8252-CAB865005A2C

Just odd moments through the years of not understanding the disconnect. I did catch that we talked black and white after many years, as we were both saying the same thing but differently, while shaking my head in confusion. I still have to stop and see through the mumbo, jumbo. Maybe it is me, something is wrong with me, was an often thought, I’m just stupid. Knowing he is intelligent, and he would tell you that, too, top in his class.

Funny how family members picked up on his oddness, especially my one sister, asking why I was marrying him. Years in our marriage, many of my family and friends  learned to dislike the man.  My older sister, living several hours away, suggested that I do not bring him back. I never did and that has been maybe twenty years ago or more. When I visit her, I make it sound like it is a girl’s weekend to transition this traveling together, never questioned. I’m sure he is relieved also to not fit into their world or routine. Everyone is happy.

The seven-year itch of marriage, was what a friend told me that I was experiencing when I mentioned something did not feel right, at that point in our marriage, a gut intuition, later to be on-point.

In this period though, I had some heart issues and was in the ER a few times. When I notified him at work, this one time, as a friend took me, she actually heard the 5C1AC260-F677-444E-8670-4F5495801AF5conversation. It was him questioning me. How long will you be there? I do not know. When will the doctor be in? I do not know. What are they going to do with you? I do not know. Will you have to stay over? I do not know. It continues, never asking how I was. Waiting for him to 5C1AC260-F677-444E-8670-4F5495801AF5ask if I was going to die. I do not know would be my response, of course. With that, and other things, I knew there was an issue.  What gives?  What is wrong with this man? Still to this day, he is never to be in the ER room, or when being prepped for surgery or in the recovery room with me because I have to answer his general questions with I do not know over and over again. One surgeon was upset with him on one occasion for not showing up and was hesitant to go forward with my surgery.  With him, I 5C1AC260-F677-444E-8670-4F5495801AF5had to say let’s do this, as I do not know where he is. The surgeon did so but was not pleased with my husband.

Life goes on and I just deal with it but by 2014, I am convinced I am the crazy one in this relationship. Wonder why? Family and friends, if I had talked to them of matters, would just say he was odd, leaving me quietly suffering, as they would not understand the extensiveness of this situation.

I finally started with my former counselor and realizing before we met, she knew marriage issues for years was the topic from our telephone call.  My first words were, as I sat in her office was that I think I am going crazy.

It may have been about two sessions with her, as it did not take her long at all to pick up on the possibility of Aspergers with him. Suggesting such, I always thought it was a childhood diagnosis, he is a grown adult, so I discounted her theory.  The following week, again 9A2FC821-A6D3-47AF-B77A-0992C5BF3B27discussing the chaos and her stating, the Aspergers, repeating for that month, I finally understood and went searching for information, books, etc. I believe she was onto something and the more I poured myself into research, talking to her and that I finally felt heard, I realized I was not crazy after all. It is the Aspergers that I had been dealing with in him, for many years.

All of these years, my married life, I thought it was me, being stupid and all. There was a freedom in knowing I was dealing with Aspergers and it ALL made sense. The lightbulb moment.

Did that make life easier? Not really. It was just knowing what I was dealing with and having facts in front of me to grasp why this or that is done or said. The many years of struggling, I gave up on our marriage and due to other situations.

My counselor back then went to a conference and Aspergers was a topic, how perfect was that. Two couples, one married for years and the wife was was just done, as in my case. The other couple was newly married and aware of Aspergers, knowing right off the bat what they were dealing with, and had hope. Interesting. I believe she heard that at a time needed for me, my life and situation.

Life as a neurotypical (NT)  with one having Aspergers (ASP) can be challenging for sure. 72933A83-FF48-45E5-836B-921F02C15E9C

Actually, I am one of the lucky ones as he is a great employee, as he diligently works in his computer analyst position of coding, etc. A position that other employees hate because it is so detailed, tedious and routine. Is he a good husband, father, brother, friend, etc.?  He is actually, as good as he can be.

A few weeks ago, I was telling him when he got home from work, of course, at the exact time as every work day, that our son was coming home to visit. While I was excited to see our son, the questions began. When will he be here? I do not know. How long will he be here? I do not know. What is he coming up here for? I do not know… perhaps just to visit. These would be non-ending questions so I walk away. I do not know how to deal with him much more, otherwise. It is okay because those are my boundaries. Otherwise, I do not know how much longer I would be there or I could take it.

Life is fun! Right? Don’t tell me, I do not know. 🤣

74835EBC-1D00-4F6D-8A5E-C92825DEFDF0

Please know, this blog is in no way bashing my husband or those with Aspergers but to allow others dealing with the same of a spouse, child, family member, friend or co-worker an insight of the black/white relationship, knowing you are not alone.  

Just that can mean the world, you are not alone. 3456A58D-FE6B-4725-AEE1-695869C2F613

Often I read in Facebook private groups (there are plenty available) tonight of wives that have an Aspergers husband. It is common to read their frustrations over and over again, many wanting to run for the hills out of desperation. 

So, if you think you or someone you know might be dealing with this, as something is just off, it is worth looking into. Look up Aspergers (Google search or Pinterest). I was blown away with the research and thank God I did, and I had a counselor to recognize the symptoms I described in my own desperation and hopelessness, after twenty-five years of marriage. 

This book was my favorite. 

Detrimental effects on Neurotypical Wives

72DA591C-82B9-474A-9952-4D1154110EBD

 

 

A Slap of Shame

While driving to work the other day, my mind was busy just thinking of this or that, what to do once there, thoughts of what recently happened, etc., as normal.

Apparently, there was a song that came on to trigger a memory but what it was, I do not know now. What I do remember is how I had to deal with this periodEC3DC5C1-9754-4D5C-B8F1-0E6F3B56699B of driving and stopping at traffic lights as I made my way toward the office.

My oldest son, years ago, was working in Tennessee and was five hours away. This was way too far I loved the location, it was beautiful and he had a nice apartment. This time in his life, he definitely matured and had to deal with matters on his own because his parents were not near and he did it, I was so proud of him. Thankfully, he was back the next school year in Kentucky. This mama was happy.  Letting go is not always easy, as most moms can attest.

A70136AA-0AB2-439A-90CC-323FD8543761It was in the winter that year especially, that his distance from home I found more depressing for me. Those Christmas songs that start way too early did not help matters. The song, “I’ll Be Home For Christmas” was the worst, or perhaps it was and is the best. I could not get through it without crying and even remembering that still while sitting at a stop light, I felt those tears well up ready to flow down my face.

This past Christmas, my oldest son and his wife were in Florida visiting her family. I adjusted very well, as I knew that was only right to share them. It was when my youngest son decided not to come home for Christmas. Although, the day before, he told me he would be on time for dinner and seemed excited and, of course, I was so happy that he would be home for Christmas. My son is coming home.

820DD634-4A6F-4958-A127-BAE882DD21A4

On Christmas Day others were late arriving, which is typical in this family but it got be very late and my son still was not present or had we heard from him. Of course, concern was trickling within my mind while I was hosting Christmas for my husband’s family. I want my son. I want him here, he is my son, he is my family. Where is he? The questions turned into worry as the time passed.

Finally, we heard from him. Oh to be young and carefree, with a sleep schedule that is all over the place. He overslept so now he has no interest to come home. Seriously?!?  My heart dropped and I was so hurt. I wanted to just sit down and bawl my eyes out. There was no way that I could keep a straight face of how that affected me and I really did not care. While I did not cry, I DF6007CA-2358-4586-B112-0F22CB8BDE3Fdid express to his father that I was not happy of his decision and they all heard me. How could they not know that? I think they heard my heart drop. I was just done. In my mind screaming, just everybody go home, as I want to fall apart and now anger was becoming a part of my emotional turmoil.

Normally, if and when hurt or in this predicament, I would just escape within myself and become quiet, not mentioning my hurt or show emotions. I wore a mask very well through the years and I could have won an Oscar. Thankfully, I am not the same person so I was not going to crawl into a shell. I did express my displeasure calmly. While I did not cry, I had to walk through the house, taking our grand dog that we were watching outside because he needed fresh air. Right? It helped the dog (and me) because when mama is not happy, nobody is happy, which was now a joke somewhat, when I returned, but true. The day continued and was fine although I had AFD3135B-1C35-4C74-8C01-BE1AB96B7E25neither of my sons at home, there was a void on Christmas.

Everyone is gone, what food was not taken by others is now all put away and dishes are done. It’s amazing how quick clean up can be done if upset. I was ahead of the game and I was ready to settle in for a long winter’s nap.

Forget the nap, my son appeared finally. The atmosphere in our living room was a little cold with our visit, at first. I knew he was uncomfortable, as I was and upset. We were all uncomfortable. He is an adult and even when younger and at home, rarely had we had such moments.  Maybe we should have had them.

Finally, the atmosphere was easing. I love my son and I know he loves me. I understand being young and doing such careless things, I really do.  Maybe, I wondered, if this was a payback to me of wrongs I did to my parent. The karma phrase many use, what goes around comes around, although that can be in bad or good but many see it as bad and want the worst, which is a whole other writing. 55D68B9F-327F-4219-BF0D-FD90DE0ADA20

Anyway, after his father went off to bed, my son and I talked. I expressed my hurt calmly and that I felt it was disrespectful of him to do this, especially on Christmas. This was not just for me but his grandparents and whole family, it is a time for all of us to be together. I wanted and needed my son at home. Knowing, too, this might be the last Christmas with the grandparents due to health issues. Also, one day he will regret the decision he made when I am gone, too, wishing he had more time with his mother.

Now that was all over, the new year is upon us and our relationship carries on and while helping him this past weekend at his new house, we had fun. Perhaps, that period and discussion brought us somewhat closer than before. He got to see his mom cry and hear the hurt of my heart, probably something that a son does not want. I was being real.4CDF2457-50F1-48D3-8846-EA6CCCF8B46C

As I mentioned before, and when they were young and at home, I wore a mask even with them, pretending that our home was a happy one between their father and myself. The mask is off more than on nowadays. I am better and happier, as it is quite nice taking care of me for once instead of hiding the sadness.

Now, with all that, while at the stop light, fighting back the tears as I could hear the song in my mind, “I’ll Be Home For Christmas,” a battle began.

It was a period of feeling like a no-good-for-nothing mother, I was wrong to express my feelings to him, he was going to pull away and never come home and that I was worthless and… WOW!!!

I caught all that and felt like25053267-F9F6-47CB-B438-38F24FA2119A a slap of shame was hitting me on one cheek and then the other and back again to make me crawl back into my hole of despair, feeling like a loser. NO, I WILL NOT!!!

All those years in counseling paid off at that point, as I could turn those negative lies around because I knew this was shame being hurled at me. I am a good mother, I have been a good mother and I always will be a good mother to my boys.

I believe that my boys and my husband and others have noticed that I am not the same person, but better. I can be direct and calm if I need to, in respect instead of hiding and them wondering if they need to walk on eggshells. I am not worthless, I am worthy to be their mother. The slap of shame had to stop.4E64CA34-5C75-4730-AD6B-4EF93158684D

Shame can and will erode any and all positive attributes in each of us. It makes us feel less than and the enemy will make sure we take that as a hook line and sinker so that we will not be all that we can be and have joy.

FEDBD51B-3170-40F7-8680-2F217B2EEBE9It felt great to know that I could acknowledge the shame and how I felt slapped from one traffic light to another. Once I grasped what was happening, turning these negative thoughts around. I was told and taught in counseling many times as we discussed such scenarios, the rewiring our brain, etc.  All of which sounded far-fetched, honestly for a long time, but I got it and I did it.

Shame, you are not going to slap me around anymore, not if I can help it.

A3A37428-760E-4795-AC06-4F63CAE79C2F

Shame is an unpleasant self-conscious emotion typically associated with a negative evaluation of the self, withdrawal motivations, and feelings of distress, exposure, mistrust, powerlessness, and worthlessness.

https://www.psychologytoday.com/us/blog/intense-emotions-and-strong-feelings/201104/shame-concealed-contagious-and-dangerous-emotion

https://www.goodtherapy.org/learn-about-therapy/issues/shame

https://www.goodtherapy.org/blog/psychpedia/neuroplasticity

Crumble or Conquer

154EA5E8-9E33-4A52-8EF0-E325816578B2What an interesting year, last year, it was for me, experiencing the ups and downs of life and holding on through it all. How about you?  As we are now over the holidays and the start of another year, how did you do and how are you holding up?

Remember, no mater what comes, we are resilient enough to move through struggles, heartaches, pain, tears, etc., even though it may not feel as such. The thoughts of give up, I cannot do this anymore or I have had enough seems to be constant thoughts or verbal outbursts at times, I know with me. Normal. Still, keep going forward as tomorrow is another day, and the days after that.1F08B259-AE97-4271-9041-FD6ADCABDEAA

Life can knock us down at times in many circumstances ABBBB1AB-2E23-46CE-88DC-1CC4DE4E6DDAbut do not stay down. Acknowledge within yourself that you have been through worse probably and are stronger than what is front of you.  Most importantly, put your trust in the Lord.  Walk and live by faith, not by sight.

Don’t crumble but conquer so that the joy in your life becomes evident to yourself and to others.  It’s there, sometimes we have to fight for it.0C19919B-E80B-47A9-9C32-62DC7F123320